Fragile X Syndrome (FXS) is the most common inherited cause of learning disability and a significant genetic condition affecting children, adults, and families across the UK. It can impact physical development, behaviour, learning, communication, and emotional wellbeing, with effects that vary widely between individuals.
This free Fragile X Syndrome Awareness Training Course is designed to give health and social care professionals a clear, practical understanding of FXS. It supports learners to recognise signs, understand the challenges faced by individuals and families, and provide informed, person-centred support across health, education, and social care settings.
Why Take This Course?
Many people with Fragile X Syndrome experience delayed diagnosis, misunderstood behaviours, and fragmented support. Families often report difficulties accessing services, managing complex needs, and coping with emotional and financial pressures.
This free course helps learners to:
- Understand Fragile X Syndrome as a genetic condition
- Recognise how FXS presents differently in males and females
- Identify physical, cognitive, behavioural, and emotional features
- Understand associated conditions such as autism and ADHD
- Support individuals and families using evidence-based, person-centred approaches
Learning Outcomes
By the end of this course, learners will be able to:
- Define Fragile X Syndrome and explain its genetic basis
- Describe prevalence and differences in impact between males and females
- Recognise common physical, behavioural, cognitive, and emotional features
- Understand diagnostic pathways and challenges, particularly in early life
- Identify appropriate interventions, therapies, and support strategies
- Support mental health and wellbeing for individuals and families
- Signpost families to specialist services, charities, and community resources
Fragile X Syndrome (FXS) Course Outline
Module 1: Fragile X Syndrome Overview
Learners will be introduced to Fragile X Syndrome (FXS) as a genetic condition that can affect physical development, behaviour, and cognitive functioning. This module explains how FXS presents differently in males and females and explores its prevalence and overall impact on individuals, families, and services.
Module 2: Testing and Diagnosis
This module focuses on how Fragile X Syndrome is identified and diagnosed. Learners will explore diagnostic approaches, including the role of family history, observation of symptoms, and genetic testing. The module also highlights challenges in early diagnosis, particularly in babies and young children, and why timely identification matters.
Module 3: Signs and Symptoms
Learners will examine the wide range of signs and symptoms associated with FXS. This includes physical characteristics, such as facial features and low muscle tone, alongside cognitive and behavioural features such as learning difficulties, speech and language challenges, hyperactivity, and social anxiety. The module also explores associated conditions, including autism and ADHD. A knowledge check supports understanding.
Module 4: Behavioural and Cognitive Challenges
This module explores common behavioural and cognitive challenges experienced by individuals with FXS. Learners will develop an understanding of impulsivity, restlessness, memory difficulties, intellectual impairments, and emotional or social anxiety. The impact of these challenges on daily life, education, and relationships is also considered.
Module 5: Health Supervision
Learners will explore health issues commonly associated with FXS, including connective tissue differences and recurrent infections. This module also explains the potential for dual diagnoses, such as autism or other developmental conditions, and the importance of ongoing health supervision and coordinated care.
Module 6: Interventions and Treatments
This module provides an overview of current interventions used to support individuals with FXS. Learners will explore behavioural approaches, educational support, physiotherapy, and other therapies. The module explains how interventions are tailored to address physical, cognitive, and behavioural needs. A knowledge check is included to consolidate learning.
Module 7: Supporting Individuals with FXS
Learners will examine the importance of early intervention and long-term support for individuals with FXS. This module highlights the role of health and social care workers in providing person-centred, tailored support. Learners will also explore the contribution of specialist services, such as occupational therapy and speech and language therapy.
Module 8: Support for Families and Communities
This module focuses on the wider support network surrounding individuals with FXS. Learners will explore the role of charities and community organisations in providing information, guidance, and practical resources. The module also covers strategies for families, including managing sensory needs and accessing essential equipment and support.
Module 9: Cost of Living Impact
Learners will explore how the cost of living crisis can disproportionately affect families supporting someone with FXS. This module examines financial pressures, access to services, and additional care-related costs. Practical solutions, support options, and available resources are discussed. A knowledge check supports understanding.
Module 10: Mental Health and Wellbeing
In the final module, learners will examine the mental health and emotional wellbeing needs of individuals with FXS and their families. This includes exploring common psychological challenges, stress, and anxiety. Learners will understand the importance of accessible mental health support, including counselling and emotional support services, as part of holistic care.
Who This Course Is For
This course is suitable for:
- Health and social care workers
- Support workers and carers
- Early years, education, and SEND professionals
- Social workers and family support staff
- Managers and team leaders in care settings
No prior specialist knowledge is required.
Frequently Asked Questions
Is this course relevant to UK practice?
Yes. The content reflects UK health, social care, and voluntary sector contexts.
Does it cover both children and adults?
Yes. The course addresses needs across the lifespan.
Is autism covered in relation to Fragile X Syndrome?
Yes. The course explains the overlap and importance of recognising dual diagnoses.
How long does the course take?
Most learners complete it in 1 hour, depending on experience and reflection.
Will I receive a certificate?
Yes. A certificate is issued on completion.
Greater awareness leads to earlier support, reduced stigma, better outcomes, and improved quality of life for individuals and families affected by Fragile X Syndrome. Understanding FXS helps professionals respond with empathy, knowledge, and confidence.
Enrol on the Fragile X Syndrome Awareness Training Course today
Build your understanding and make a meaningful difference to the lives of individuals and families living with Fragile X Syndrome.
Fragile X Syndrome Awareness Training Course CPD Accredited and Government Funding
We’re working on getting this Fragile X Syndrome Awareness Training Course CPD accredited, and any course that’s approved will be clearly labelled as CPD accredited on the site. Not every health and social care course has to be accredited to help you meet CQC expectations – what matters is that staff are competent, confident and properly trained for their roles under Regulation 18. Our courses are built to support those requirements, and because they’re not government funded there are no eligibility checks or ID needed – you can enrol and start learning straight away.
