1.1 Summarise legislation and frameworks in relation to the care and support of an individual with dementia

This guide will help you answer 1.1 Summarise legislation and frameworks in relation to the care and support of an individual with dementia.

Caring for someone with dementia in the UK must follow the law and set frameworks. These laws and frameworks help protect the rights, dignity, and safety of the person. They guide health and social care workers in how to provide support that respects the individual’s needs and wishes. Understanding them helps you work legally, professionally and with compassion.

The Care Act 2014

The Care Act 2014 is a key piece of law in England for adult social care. It brings together previous laws into one framework. It aims to protect people’s well-being, give them control, and promote independence.

For people with dementia, the Care Act says:

• Local authorities must assess needs for care and support.
• Carers of people with dementia also have a right to an assessment.
• Care planning must take account of the person’s wishes, feelings, beliefs, and culture.
• Services aim to prevent, reduce, or delay the need for care.
• People have a right to information and advice to help them make decisions.

The law uses the “well-being principle.” This means all decisions about care must look at the person’s physical, mental, and emotional well-being. For someone with dementia, this can mean considering how support affects memory, independence, and daily life.

The Mental Capacity Act 2005 (MCA)

The MCA applies to people aged 16 and over in England and Wales who may lack capacity to make certain decisions. Dementia can affect capacity, but capacity is decision-specific. A person might be able to decide what to wear, but not manage their finances.

The MCA is based on five key principles:

• Assume capacity unless proven otherwise.
• Give the person all possible support to make their own decision.
• Do not treat someone as unable to decide just because they make an unwise choice.
• Any decision made for someone who lacks capacity must be in their best interests.
• Choose the option that is least restrictive to the person’s rights and freedom.

The MCA also introduced:

• Lasting Power of Attorney (LPA) so people can choose who makes decisions if they cannot in the future.
• Advance decisions to refuse treatment in certain situations.
• Court of Protection to settle disputes about capacity and decisions.

For people with dementia, the MCA gives legal protection and helps workers involve them in decisions for as long as possible.

The Human Rights Act 1998

The Human Rights Act makes the rights in the European Convention on Human Rights part of UK law. It applies to public bodies such as NHS services and local authorities.

Key rights affecting dementia care include:

• Right to life – care planning must protect health and safety.
• Freedom from inhuman or degrading treatment – care must be respectful and never cause harm or humiliation.
• Right to liberty and security – restrictions, like locking doors or holding someone in hospital, must be lawful and necessary.
• Right to respect for private and family life – this includes personal choices, relationships, and privacy.

These rights mean dementia care must always respect the person’s dignity and freedom, while balancing safety.

Equality Act 2010

The Equality Act protects people from discrimination. Dementia can be classed as a disability under this law, as it has a long-term and substantial effect on daily life.

The Act says service providers must:

• Make reasonable adjustments to remove barriers. This may include using clear signage, adapting communication, or creating dementia-friendly environments.
• Not discriminate, harass, or victimise someone because of disability.
• Promote equality of opportunity.

Following this law removes stigma and promotes inclusion.

The Health and Social Care Act 2008 (Regulated Activities) Regulations 2014

These regulations outline the fundamental standards of care that regulated services must meet in England, monitored by the Care Quality Commission (CQC).

Standards relevant to dementia care include:

• Care must be person-centred, safe, and effective.
• Consent must be sought in line with the MCA.
• Dignity and respect must be maintained at all times.
• There must be safeguarding measures to protect people from abuse or neglect.

Failing to meet these standards can lead to enforcement by the CQC.

Data Protection Act 2018 and UK GDPR

These laws control how personal information is used. In dementia care, personal data can include medical history, care plans, or personal preferences.

Key rules:

• Information must be used lawfully, fairly, and transparently.
• Only collect the data needed for a specific purpose.
• Keep data accurate and up to date.
• Store data securely.
• Give people access to their own information.

Breaching these rules can cause distress to the individual and legal problems for the service.

Safeguarding Frameworks

Safeguarding relates to protecting a person’s right to live free from abuse and neglect. The Care Act 2014 sets out statutory safeguarding duties.

For adults with dementia, safeguarding involves:

• Recognising signs of abuse such as neglect, financial exploitation, or emotional abuse.
• Recording and reporting concerns promptly.
• Working with multi-agency safeguarding teams.

This framework requires all care workers to act quickly if they suspect abuse or neglect.

NICE Guidelines on Dementia

The National Institute for Health and Care Excellence (NICE) publishes guidance for health and social care. The main guideline for dementia is NG97: Dementia: assessment, management and support for people living with dementia and their carers.

It covers:

• Early diagnosis and assessment.
• Involving the person and their family in decisions.
• Non-drug interventions like cognitive stimulation or music therapy.
• Planning for future needs.
• Supporting carers.

NICE guidelines are not laws, but services are expected to follow them as best practice.

National Dementia Strategy and Policy Frameworks

The National Dementia Strategy (2009), and later updated policy documents like the Prime Minister’s Challenge on Dementia, set out government priorities.

These focus on:

• Improving public and professional awareness of dementia.
• Earlier diagnosis and better information.
• High-quality care whether at home, in hospital, or in care homes.
• Support for carers.
• Creating dementia-friendly communities.

These policies influence how services are funded and organised.

Deprivation of Liberty Safeguards (DoLS) and Liberty Protection Safeguards (LPS)

Under the MCA, the Deprivation of Liberty Safeguards protect people who cannot consent to their care arrangements, and whose freedom is restricted in a care home or hospital.

Examples of restrictions include:

• Locked doors.
• Supervision at all times.
• Preventing someone from leaving.

DoLS applications must show the care is in the person’s best interests, necessary, and the least restrictive option. These safeguards are being replaced by the Liberty Protection Safeguards (LPS) to make the process simpler and cover more settings.

Linking Legislation and Practice

Legislation and frameworks do not work in isolation. They connect to daily practice. For example:

• The Care Act links with safeguarding, assessments, and support planning.
• The MCA links to DoLS and LPS when looking at liberty and choice.
• Human Rights laws link to dignity, privacy, and protection from harm.
• Data protection links to safe record keeping and confidentiality.

Using these together ensures lawful, ethical, and effective dementia care.

Final Thoughts

Caring for someone with dementia requires more than good intentions. It needs knowledge of the legal rights and protections that apply. Legislation such as the Care Act, MCA, Human Rights Act, and Equality Act safeguard the person’s dignity, independence, and safety. Frameworks like NICE guidelines and safeguarding duties guide good professional practice.

By understanding and applying these laws and frameworks, you protect the individual and yourself. You work in a way that values the person and respects their choices for as long as possible. Dementia changes how someone thinks, feels, and remembers, but it does not remove their right to be treated with kindness, fairness, and respect. Your role is to make those rights real in everyday care.